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Great News!
Great news from doctors today! 🔺Dr Daver (MDS) said “yes” remission and looks like my genetic mutations are gone because of donor’s blood taking over. This is significant because the mutations put me in a higher risk category of MDS. 🔺Dr Champlin says later this week he wants me to start a maintenance drug for
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Halfway to 100 Days!
Yesterday was the halfway mark of 100 days post transplant!!! Cannot wait to hear the words from my team- You can go home! Still hoping for before Christmas though Day 100 is Jan 1! Friday was our warmest day for awhile- maybe for the rest of our time in Houston. We took a drive to
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A Visit and a Getaway
Our oldest daughter, Amy, arrived on Thursday afternoon and David left on Friday morning. David took the car so we rented a golf cart to get around the RV park for a couple days. David went camping and bike riding in the Hill Country near San Antonio. Amy went with me to clinic on Friday
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Donate to Give Cancer the Boot!
I’m helping give back to MD Anderson – who has cared so well for me! You can donate for the annual Give Cancer the Boot drive here: REGISTER OR DONATE HERE: Also, join me and my family on Saturday, November 5th, as we all walk 1.2 miles (from all over the country!) in some “boots”
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REMISSION!
We were told yesterday that I am in REMISSION! There is no evidence of Mantle Cell Lymphoma or Myelodysplastic Syndrome in my blood. This means the transplant has worked as far as ridding my body of detectable cancer cells. Praise God for your answered prayers. We still have to stay in Houston so the team
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Some things change, some things stay the same…
Today is Saturday but it is a clinic day for me. So waiting to go back for my magnesium infusion. Dave will hook me up for my antibiotics at the same time. Both infusions take two hours so doing them simultaneously saves time!I am doing better. My appetite improves each day. I can walk farther
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30 Days Since Transplant
It has been 30 days since my transplant! This week I was given Friday and Sunday (today) off from clinic. I have a labs tomorrow and a Bone Marrow Biopsy tomorrow but no clinic ( that means no infusions. I still have my at home antibiotics infusions three times a day. I am eating a
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Houston Home (and Hooked Up!)
On Friday evening I was finally discharged from the hospital! No more inpatient for now. However, David has to hook me up to IV antibiotic infusions three times a day. This means hook up at 6am unhook at 8; hook up at 2 unhook at 4; hook up at 10 unhook at midnight. Then we
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After 29 Days….discharge!!!!
Today, Oct 14, I should be discharged from the hospital. I have been here for 29 days. We are ready to get out of here for sure! We have to go home with three times a day IV antibiotics for a month. They will train David how to do the procedure. Yay!!! We are getting
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Ups and Downs
Each day has it’s own ups and downs. Some meal times I feel like eating, and others I don’t. Friday my WBC was way up to 5.9! Today it is down to 4.5. So this is to be expected, too, a little up and down, but all trending the right way overall. Other blood numbers



